Health Data and Human Rights

Doc Searls and Katherine Druckman talk to Adrian Gropper, CTO of Patient Privacy Rights, about health data and human rights, delegating patient agency, and health data standards.

• Patient Privacy Rights — Patient Privacy Rights’ purpose is to honor and empower the individual’s right to privacy through personal control of health information wherever such information is collected and used. We educate, collaborate and partner with people to ensure privacy in law, policy, technology, and maximize the benefits from the use of personal health information with consent.
• The Age of Surveillance Capitalism: The Fight for a Human Future at the New Frontier of Power: Zuboff, Shoshana: 9781610395694: Amazon.com: Books — The challenges to humanity posed by the digital future, the first detailed examination of the unprecedented form of power called "surveillance capitalism," and the quest by powerful corporations to predict and control our behavior.